When you or your baby are first diagnosed


For many people, a congenital CMV diagnosis for your baby is a life-changing event. We hope this information will help.


When you are first told your babies diagnosis it can be difficult to take in the news immediately. You might hear the words, but not be able to absorb them or believe them. There are many reasons for this reaction. People often describe the first weeks after a congenital CMV diagnosis as a roller-coaster or whirlwind. Learning that your baby has congenital CMV can be a shock and you may worry about what it will mean for your babies life in the future.


It is natural to feel overwhelmed and confused at times about what this could all mean, a congenital CMV diagnosis can be very stressful.   Your feelings may be constant or they may come and go. You may find that some pass with time, while others last longer. At times it may feel like you’re on an emotional roller-coaster. There is no right or wrong way to feel – experiencing a range of emotions is normal and everyone will cope differently.


These thoughts and feelings are a natural reaction to a serious health situation however there are ways you can help manage these feelings such as finding reliable information and the right kind of support. Talking to family and friends is often helpful, and some people find joining a support group like CMV Australia – Family Support helps them feel reassured and less alone.