Congenital CMV Association of Australia is an incorporated association registered with both the NSW Department of Fair Trading and the Australian Charities and Not-for-profits Commission. Our constitution is available here to view.
The Congenital CMV Association of Australia Inc. is governed by a Board, which is accountable to our members. The Board is comprised of a president, vice president, treasurer, secretary and three general members. The board is elected by the members at the Annual General Meeting each year.
Kate is the founder and president of the Congenital CMV Association of Australia, launching the Association after giving birth in 2010 to twins who were infected with cytomegalovirus during pregnancy. Kate lives in Sydney with her husband, Hugh, and four children – Ellen, Grace, William and Emmaline. William is profoundly deaf with mild cerebral palsy, dyspraxia and a moderate global developmental delay caused by CMV infection during pregnancy. Emmaline has been fortunate with only a learning disability involving her working memory.
I started the association in the hope that other parents won’t have to feel as alone as I did when William was first diagnosed. I also wanted to raise awareness about cytomegalovirus so that other parents can have an opportunity I didn’t, to minimize their risk of contracting the virus and giving it to their unborn babies.
Sam lives in Sydney with his partner Jane and their two boys. They have been great supporters of CCAA since its beginning, with Sam joining the board as our Treasurer in 2015. As an experienced mortgage adviser and a qualified finance adviser who runs his own business Sam is the perfect addition to our team.
To be added.