You are not alone
Support for CMV families
A CMV diagnosis can be overwhelming. We're here to connect you with the support, resources and community you need — every step of the way.
When you or your baby are first diagnosed
Receiving a CMV diagnosis can feel isolating and frightening. Here are some first steps to help you navigate this moment.
Feelings you may experience
Understanding the emotional journey after a diagnosis — and how to work through it.
Building coping skills
Practical tools and strategies to help your family cope day to day.
Connect with other families
You don't have to go through this alone — find community in our support forum.
Register with CMV Association
Join our family registry to access support and stay informed about research and resources.
Support resources
Whether you've just received a diagnosis or have been living with CMV for years, we have resources and community to support you.
Share your story
Your experience can help other families. Share your CMV story and help raise awareness across Australia and Aotearoa NZ.
Share →In Loving Memory
A place to honour and remember children and loved ones lost to the impacts of congenital CMV.
View →Helpful links
A curated collection of external resources, organisations and support services for CMV families.
View links →Help us support more families
Your donation funds our family support programs, awareness campaigns and advocacy for CMV research across Australia and Aotearoa NZ.
Donate now →[vc_row][vc_column width=”1/4″][vc_column_text]When you are first Diagnosed
CMV registry for families[/vc_column_text][/vc_column][vc_column width=”3/4″][vc_column_text]The Congenital CMV Association of Australia has a Facebook group called CMV Australia – Family Support where you have an opportunity to talk with other people in a similar situation all over Australia and New Zealand. You will find it is a friendly and supportive environment where everyone is welcomed. Often people find joining a support group like this helps them feel reassured and less alone.
Our support group is also a closed forum for members only, respecting the privacy of parents with children born with congenital cytomegalovirus, mothers pregnant with CMV and adults who were born with cCMV. Group admin will always endeavour to only add extended family to the group on the request of the immediate effected family.
Joining up is easy:
- Join here to become a member.
- You will then need to sign up to Facebook if you don’t already have an account.
- Locate our support group at CMV Australia – Family support and request to join.
- Although we aim to respond to everyone in a timely manner, sometimes it can take a little longer so please be patient with us.
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